Category: Blog

  • Thank you to Luk Zelderloo as he steps down from EASPD

    These are the last working days for Luk Zelderloo as EASPD secretary general. I would like to share some words. Luk has built EASPD over the past 25 years from an idea to a significant presence in EU disability affairs. (Sometimes too significant for my liking, but that is for another time 😉) We can […]

  • Recommendations for Polish deinstitutionalisation strategy

    Polskie Forum Osób z Niepełnosprawnościami organised a conference called “We have the right to live independently. We cannot wait any longer”, and I was invited to speak during a panel about the Polish deinstitutionalisation strategy and “whether we have to wait until 2030?” I offered suggestions for deinstitutionalisation: Prevent institutionalisation of those living in the […]

  • Deinstitutionalisation and families

    Today I spoke during a EESC hearing about challenges of the transition from institutional to community-based support for persons with disabilities and the role of families as their carers. I talked about priorities in deinstitutionalisation, one of which must be making the changes work for people with complex support needs too. They are often left […]

  • Institutionalisation of old people in Czechia

    Forum for human rights, Validity launch of report on institutionalisation of old people, September 2021. My remarks:   Massive institutionalisation of older people demonstrates the failure of policy when it comes to securing support and care. It stems from lack of understanding how support and care should and can be provided. And it is based […]

  • Voter suppression? That’s fine by us says European Court of Human Rights

    Written for Inclusion Europe 13 September 2021. When the news is filled with clawing away of people’s rights, and chipping away on the rule of law, what does a democratic-minded person do to keep hopeful and level-headed? We look up to the institutions charged with protecting them, of course. But what does one do when […]

  • Ach jo aneb Volební programy 2021

    Přehled volebních programů 2021 v otázkách sociálních služeb a specificky lidí s postižením a jejich rodin. (Týká se jich samozřejmě vše, já tím myslím věci, které jsou jim jmenovitě směřovány.) A opakuji: přehled, žádná zásadní analýza. Ono ani není moc co analyzovat. Piráti a starostové Práce a sociální péče. Piráti/Stan už se vidí ve vládě, tak k […]

  • Česko prohrává

    Jasným poraženým letošního fotbalového Eura je Česko: země, která se podle Fotbalové asociace ČR turnaje vlastně ani neúčastní. Že je to nesmysl? Že se Česku na Euru docela daří? Ale to se pletete: Česko na turnaji nehraje, jen cosi, čemu ve FAČR říkají #ceskarepre. Tvrdí se, že sport je výrazný nástroj, jak propagovat svou zemi. […]

  • Just some work from last year which, in retrospect, makes me happy.

    Ambitions. Rights. Belonging

    I don’t know about you but I don’t find project reporting particularly enjoyable. It doesn’t help when it is all about a year which itself was incredibly hard. But there is one element to it which is quite gratifying: seeing all of the year’s work collected and summarised together. It gives you a perspective on […]

  • Neglect and discrimination multiplied

    The pandemic made existing problems, discrimination and segregation worse

    Inclusion Europe has published a new report on how the coronavirus and the measures implemented in response to the pandemic have impacted on the rights and lives of people with intellectual disabilities. It makes for grim reading, finding that the discrimination and neglect faced by those with intellectual disabilities worsened during the pandemic. Politico.eu The Inclusion Europe […]

  • “It makes for grim reading”

    NOW READ THIS: Inclusion Europe has published a new report on how the coronavirus and the measures implemented in response to the pandemic have impacted on the rights and lives of people with intellectual disabilities. It makes for grim reading, finding that the discrimination and neglect faced by those with intellectual disabilities worsened during the pandemic.

    Even thought the report itself is very grim and infuriating, it made me very happy to see it being recommended by the widely-read Politico Brussels Playbook morning newsletter. The report is about covid-measures impact on the rights and lives of people with intellectual disabilities and their families. The newsletter is almost a required reading for […]